Useful links

ACT (Association for Children with Life-threatening or Terminal Conditions and their Families)
www.act.org.uk
Tel: 0117 922 1556
Provides information on support services for families whose children have life-threatening or terminal conditions, regardless of the disease involved. It is involved in encouraging the development of children's palliative care services. There is a charter setting out the standards and facilities which should be available for all affected families.

After Cure
www.aftercure.org
Website developed by the UKCCSG Late Effects Group. Covers issues facing childhood cancer survivors, such as keeping healthy, insurance, travel, fertility, support and information with links to other sites.

Bone Cancer Research Trust
www.bonecancerresearch.org.uk
The Bone Cancer Research Trust is devoted to promting research by funding projects investigating the causes and treatment of primary bone cancers. The Trust also provides information and plans to offer support and counselling services for patients, former patients and their families and friends.

CancerBACUP
www.cancerbacup.org.uk
Tel: 0808 800 1234
Helps people affected by cancer, their families & friends. Qualified cancer nurses provide information, emotional support and advice by telephone or letter. Provides booklets, factsheets and ;newsletters.

Cancerhelp UK
www.cancerhelp.org.uk
Tel: 020 7061 8355
CancerHelp Uk is the patient information website of Cancer Research UK. Information includes symptoms, diagnosis, treatment, current research and issues to do with living with cancer. There is also a list of currently recruiting UK cancer trials. You can also use the website to contact their team of cancer nurses, or call the number above.

The Childhood Eye Cancer Trust (formerly known as Retinoblastoma Society)
www.chect.org.uk
Tel: 020 7377 5578
Promotes and funds research. Links families in the same situation and area offering support and practical help. Newsletters and information leaflets available.

Christian Lewis Trust
www.childrens-cancer-care.org.uk
Tel: 01792 480500 (Mon-Fri, 9.30am-5pm)
Telephone and a range of other support services for children with cancer and their families. Bereavement support, befriending, and self help parent support groups. Compassionate care grants. Crisis breaks via four mobile home sites in Wales, Disneyland Paris and Disney World Florida. Play therapy, holiday programmes, travel insurance.

CLIC Sargent
www.clicsargent.org.uk
Tel: 0800 197 0068 (Mon-Fri 10am-8pm, Sat 10am-4pm)
Supports children and young people (under 21) who have any form of cancer, and their families. Provides nurses, social workers, play therapists, homes-from-home, holidays, welfare grants, benefits advice and general information. Funds research into treatment and care.

Leukaemia Care
www.leukaemiacare.org.uk
Tel: 0800 169 6680 (24 hours)
Offers emotional support, befriending, support groups, financial assistance, holiday programmes. Promotes the welfare of people with leukaemia and allied blood disorders.

Leukaemia & Lymphoma Research
www.llresearch.org.uk
Tel: 020 7405 0101 (Mon-Fri 9am-5pm)
Leukaemia & Lymphoma Research is the only UK charity solely dedicated to research into blood cancers, including leukaemia, lymphoma and myeloma.

Lymphoma Association
www.lymphoma.org.uk
Tel: 0808 808 5555 (Mon-Fri, 9am-5pm)
Provides information and emotional support for lymphoma (Hodgkin's disease and non-Hodgkin's lymphoma) patients and their families. Literature, a quarterly newsletter and videos are available. Network of helpers with experience of the disease.

Macmillan Cancer Support
www.macmillan.org.uk
Tel: 0808 808 2020 (Mon-Fri, 9am-10pm)
Helpline providing support to people with cancer and their families. Emotional support and signposting, information on different cancers, support groups and general enquiries about the NHS. Funds specialist nurses, doctors and services for cancer treatments and care. Grants for cancer patients with financial difficulties.

Also Macmillan YouthLine
Tel: 0808 808 0800
Offering cancer information and support to 12-21 year olds affected by cancer, whether the caller is a patient, family member or friend.
You can also email: youthline@macmillan.org.uk

NACCPO (National Alliance of Childhood Cancer Parent Organisations)
www.naccpo.org.uk
Tel: 01785 603763
NACCPO is made up of parent-run organisations that have common aims of working together to support children with cancer. It aims to share best practice between member local parent organisations in the UK and to create a national voice for parents of children with cancer. Call them if you want to find out about local support groups in your area.

The Neuroblastoma Society
www.nsoc.co.uk
Tel: 01727 851818
Information and advice for patients and their families. Provides contact where possible with other who have experienced the illness in the family, for mutual support.

Teenage Cancer Trust
www.teenagecancertrust.org
Tel: 020 7387 1000
Information, support and advocacy for teenagers and their families. Raising funds to build and equip 20 specialist units to treat and care for adolescents. Designed to meet the emotional, physical and psychological needs of the teenagers. Dedicated nursing posts and research into adolescent cancer.

UKCCSG (United Kingdom Children's Cancer Study Group)
www.ukccsg.org
Tel:0116 249 4460
Founded by health professionals working in the 21 paediatric oncology centres across the UK to share data and good practice. Has good material and information for families of children with cancer. Quarterly magazine Contact, support and information for siblings and more. Information on clinical trials.